Caring for the Child or Young Adult with SMA: Palliative Care and the Role of the Supportive Home Care Nurses' Decision Making

Self-Directed Learning


Listen to a recorded presentation by a pediatric nurse practitioner talk about the role of supportive home care nurses in family decision-making.  This course is intended for health care professionals to gain a baseline knowledge for care to a patient with Spinal Muscular Atrophy (SMA).

  • Pediatric palliative care is defined and explored
  • Pediatric palliative care is evaluated for its use in SMA
  • Difficult decision-making about intensive therapies of pediatric clients with SMA is examined


Criteria for Successful Completion of Activity
  • Complete entire Self-Directed Learning
  • Complete evaluation with electronic signature











Target Audience





Learning Objectives

By the end of this educational activity the learner will be able to:

  • comprehend the role of pediatric palliative care (PPC).
  • explore the relationship between PPC and SMA.
  • discuss care options, goals, & decision-making for pediatric clients and families.
  • identify effective coping and communication strategies for self-care when caring for a child with SMA.
Course summary
Available credit: 
  • 1.50 Contact hours (ANCC)
  • 1.50 Participation
Course opens: 
Course expires: 

No relevant conflict of interest or financial relationships were disclosed for this educational activity by any of the authors or presenters.

Vanessa Battista, RN, M.S., CPNP, CCRC is a board certified Pediatric Nurse Practitioner (PNP) and is currently a member of the Pediatric Advanced Care Team (PACT) at The Children’s Hospital of Philadelphia. She holds a B.A. in psychology from Boston College, a B.S. and M.S. from Columbia University School of Nursing, and a certificate in Pastoral Ministry from the Boston College School of Theology and Ministry. Vanessa has been caring for children and families living with SMA for the past ten years and has participated in various aspects of clinical research.  As a PNP, Vanessa worked at the Pediatric Neuromuscular Center/Spinal Muscular Atrophy Research Center at both Columbia University Medical Center and The Children’s Hospital of Boston. Vanessa’s interests lie in providing interdisciplinary care to children/adolescents and families living with chronic conditions. She lectures and teaches nationally and internationally and serves on various advisory boards.  She is currently an investigator on a CureSMA funded research study exploring decision-making for children with SMA. She is also a member of the CureSMA Medical Advisory Council (MAC) and a member of the End-of-Life Nursing Education Consortium (ELNEC) pediatric faculty.

Available Credit

  • 1.50 Contact hours (ANCC)
  • 1.50 Participation


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If course is cancelled:

By BAYADA; if the education is cancelled for any reason the learner will receive a full refund for any applicable course fee.  BAYADA will not be responsible for any associated fees or costs such as travel or lodging.

By learner; any applicable course fee will be refundable up until one (1) day prior to date registered for the education.  After this date the course fee may be non-refundable.  BAYADA will not be responsible for any associated fees or costs such as travel or lodging.

Complaint Resolution

Contact  for any grievances and the complaint will be addressed within two (2) business days.  Complaints will be disseminated to all appropriate parties for review and resolution of any conflicts or grievances.

Special Needs

Contact  for consideration of request.  If special needs accommodations are not available, the participant will receive a full refund for any applicable course fee.